Monday, May 19, 2008

April 24, 2008

I had my 9 month check-up with Dr. Kerr. He said my walking has improved from my six month check-up. My balance is better and I was able to do the tandem/tightrope walk for the first time. In the past, I would tip over and look very uncoordinated trying to walk heel to toe. Now, I am better at it. Dr. Kerr also had encouraging data from other HiCy patients who showed improvements up to 4 years after treatment!

It is great to hear a brilliant neurologist and researcher say that one can continue to reverse the MS Damage. My homework is to continue working out at the gym and to push myself to increase my walking distance/duration. I will also use every one of the physical therapy appointments that my insurance company has approved. I was given 2 per week for 4 months. My PT has helped me compensate for past MS Damage by working on balance and gait exercises. Dr. Kerr also told me that there is much more interest in HiCy and they are gearing up to see more MS patients and help other clinics/hospitals to use the protocol too. I said that I hope it will be given to patients earlier in the disease to "shut it off" so they don't have to go through as much as I did to get here. Dr. Kerr agreed that it should be offered earlier. I was happy to learn that MS patients that had read my Blog have scheduled appointments to be evaluated at Johns Hopkins. It is my sincere wish that this treatment will continue to bring recovery and inspire new hope for a brighter future to other MS patients.