Monday, May 19, 2008

April 24, 2008

I had my 9 month check-up with Dr. Kerr. He said my walking has improved from my six month check-up. My balance is better and I was able to do the tandem/tightrope walk for the first time. In the past, I would tip over and look very uncoordinated trying to walk heel to toe. Now, I am better at it. Dr. Kerr also had encouraging data from other HiCy patients who showed improvements up to 4 years after treatment!

It is great to hear a brilliant neurologist and researcher say that one can continue to reverse the MS Damage. My homework is to continue working out at the gym and to push myself to increase my walking distance/duration. I will also use every one of the physical therapy appointments that my insurance company has approved. I was given 2 per week for 4 months. My PT has helped me compensate for past MS Damage by working on balance and gait exercises. Dr. Kerr also told me that there is much more interest in HiCy and they are gearing up to see more MS patients and help other clinics/hospitals to use the protocol too. I said that I hope it will be given to patients earlier in the disease to "shut it off" so they don't have to go through as much as I did to get here. Dr. Kerr agreed that it should be offered earlier. I was happy to learn that MS patients that had read my Blog have scheduled appointments to be evaluated at Johns Hopkins. It is my sincere wish that this treatment will continue to bring recovery and inspire new hope for a brighter future to other MS patients.

3 comments:

Chris & Chenell said...

Glad to hear you are doing so well. Would you mind if we included your blog feed on our new site gotHiCy.com? Please contact m! :)

Jimbo T Elephant said...

This is fantastic news.

My fiance had HiCy, as a result of reading this blog amongst others, she was eraly in the disease, has shut it off and is recovering extraordinarily quickly!

Thank you so much!

Lisa said...

In 2006, Laura Lawes was diagnosed with Multiple Scelrosis and given a life expectancy of one year. Three years later, she was not only living strong, but she gave birth to her first son. It was called "a miracle birth". These miracles are possible today, because of the work organizations, such as yourself, have done. Here, at Disease.com (a website dedicated to disease preventions and treatments) we are inspired by stories such as this, and would like to join you in fighting this cause. If you could, please list us as a resource or host our social book mark button, it would be much appreciated. Lets create more of these miracles; together.If you want more information on that please email me back with the subject line as your URL.